News & Events
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September 11, 2023 - September 13, 2023
2023 Rare and Orphan Disease Conference presented by C-Path
Patients, providers, researchers, clinicians, biopharmaceutical companies, regulatory reviewers and scientists will leave this 2.5-day conference with an understanding of: C-Path’s Rare and Orphan Disease Program’s current and future impact on drug development in rare diseases The Critical Path for Rare Neurodegenerative Diseases (CP-RND) initiative’s first year impact and highlights How RDCA-DAP has been enhanced...... -
August 10, 2023
Register Now: Teaching Patients and Caregivers: The Role of Education in Research and Data Sharing
Thursday, August 10, noon ET: This webinar will focus on the role of foundational education in research concepts, such as data literacy and the research process, in creating a culture of research participation and data sharing in the rare disease space. Intended for patient advocacy groups and researchers who work with rare disease patients, the...... -
June 25, 2023 - June 29, 2023
DIA 2023 Global Annual Meeting | ILLUMINATE
The DIA 2023 Global Annual Meeting invites industry, regulatory government, academics, and patients to network, problem-solve, and discuss global and local challenges facing the life sciences community. Hosted in Boston, key C-Path personnel will be on-hand to discuss and view the many different perspectives offered at this event, while highlights expertise across the globe to...... -
May 18, 2023
View Now: GUIDs and De-Identification Tools for Rare Diseases
C-Path’s Rare Disease Cures Accelerator-Data and Analytics Platform is pleased to present this new webinar, GUIDs and De-Identification Tools for Rare Diseases, led by CuresDev CEO Sanath Kumar Ramesh. The webinar will discuss the need for rare disease communities to adopt common GUIDs and why this helps maximize the use of patient data integrated in RDCA-DAP. It...... -
April 27, 2023
View Now | Clinical Outcome Assessments: Does one size fit all?
Join C-Path’s Rare Disease Cures Accelerator-Data and Analytics Platform and its Rare Disease Clinical Outcome Assessment Consortium executive leaders Alexandre Betourne and Lindsey Murray for this new webinar Clinical Outcome Assessments: Does one size fit all? The webinar will cover: The complexity of identifying appropriate clinical outcome assessments for rare disease clinical trials An overview of the Rare......