View Now: Teaching Patients and Caregivers: The Role of Education in Research and Data Sharing

Thursday, August 10, noon ET:

  • This webinar will focus on the role of foundational education in research concepts, such as data literacy and the research process, in creating a culture of research participation and data sharing in the rare disease space. Intended for patient advocacy groups and researchers who work with rare disease patients, the webinar will provide knowledge and resources to help patients and caregivers understand and engage in the research process.


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