News & Events
-
September 13, 2022 - September 14, 2022
View Now | 2022 RDCA-DAP Workshop, September 13-14
Since its launch in 2019, the Rare Disease Cures Accelerator-Data and Analytics Platform initiative (RDCA-DAP®) has established itself as the leading platform to accelerate rare disease treatment innovation. Join us this September as we bring rare disease stakeholders together for next-level platform demonstrations and case studies, industry expert presentations, panel discussions and more. Attendees of...... -
August 17, 2022
View Now | Addressing the Gaps in Clinical Trial Readiness for FSHD
Facioscapulohumeral muscular dystrophy (FSHD) is one of the most common myopathies affecting anywhere between 1:8,000 to 1:20,000 individuals. There are currently no effective therapies for this indication. The FSHD Society is a research-focused patient advocacy nonprofit organization dedicated to finding a treatment for this devastating disease while also empowering the patient community. With increasing interest...... -
June 15, 2022
View Now | Using Ontologies to Standardize Rare Disease Data Collection presented by Monarch Initiative
This webinar will provide an overview of biomedical ontologies and demonstrate how they can be used for standardizing and integrating data and downstream analyses. In addition, we will discuss why you should contribute to ontology development efforts and how to do it. The Monarch Initiative is an integrative data and analytic platform connecting phenotypes to...... -
May 18, 2022
View Now: Generating Synthetic Longitudinal Data presented by Replica Analytics
In this webinar, Replica Analytics’ Dr. Khaled El Emam is joined by Director of Data Science Lucy Mosquera to provide a general introduction to synthetic data generation (SDG), explaining what it means, how it works and what technologies are used, as well as an overview of the use cases where synthetic data can provide value...... -
March 16, 2022
View Now | AI-powered Real-world Simulations for Faster and Value-based Rare Disease Drug Development
This presentation will to show how Quinten Health can use a data-integrative, value-based and disease-centric analytic approach to support RDCA-DAP’s mission to accelerate and de-risk trials, while maximizing the real-world value of rare disease products in development.