Blog

Filter by Category

All Annual Meetings Blog Events Newsletters Podcasts Posters Publications Webinars Workshops

Filter by Program

Filter by Date

May 29, 2026

ALS Awareness Month: Connecting the Dots in ALS Research

A single clinical study can generate millions of data points. For more than a year, people living with amyotrophic lateral scleros

May 26, 2026

Huntington’s Disease Awareness Month: Advancing Drug Development Through Lived Experience

Each May, Huntington’s Disease Awareness Month serves as an important opportunity to raise visibility for...

May 22, 2026

Moving Treatments Across the Finish Line: A Focus for ALS Awareness Month

Twenty-four years ago, Fernando Vieira lost his best friend to amyotrophic lateral sclerosis (ALS). Driven by that loss, he joined

May 19, 2026

Advancing Hope in Progressive Supranuclear Palsy: Collaboration, Data, and Innovation During PSP Awareness Month

Each May, Progressive Supranuclear Palsy (PSP) Awareness Month shines a light on a devastating neurodegenerative disease...

April 1, 2026

Advancing Rare Disease Innovation Through Responsible Data Sharing — Key Takeaways from the RISE Together: Data Sharing Across the Rare Disease Ecosystem

At a recent public workshop co-convened by the Duke-Margolis Institute for Health Policy...

February 26, 2026

Amidst Rare Disease Awareness Month, C-Path Shines a Light on Listening As a Form of Precision Medicine

This perspective builds on insights shared during C-Path’s Global Impact Conference 2025 panel, “Ensuring a Focus on...”

February 20, 2026

What Collaboration Makes Possible

On a Tuesday afternoon in the fall of 2019, a biostatistician from a pharmaceutical company...

February 12, 2026

Building the Infrastructure of Hope

Medical history is usually written as a chronicle of individual breakthroughs. We learn about Fleming discovering penicillin...

February 1, 2026

Turning the Impossible into the POSSIBLE

February is Rare Disease Month. It is a time when the global community unites to support the 350 million people worldwide...

September 7, 2025

World Duchenne Awareness Day: Celebrating 10 Years of D-RSC’s Commitment to Serve the Duchenne Community

Today is the World Duchenne Awareness Day (WDAD), an annual event that raises global awareness and understanding of Duchenne...

Previous12 Next