Innovative Use of Healthcare Data, ERN Data Management Strategy Multistakeholder Workshop The presentations of the workshop sessions are now available. In order to download the presentations...
April 12, 2022 RDCA-DAP Responsive Curation Levels – Dr. Ramona Walls This was presented as part of the RDCA-DAP monthly steering committee meeting, on April 12, 2022. It describes the 8 curation...
April 22, 2022 Perceptions of Parents, Nurses and Physicians Regarding Research Communication in the NICU: Results of an International Survey
October 5, 2021 CURE ID: Capturing Clinician’s Experiences Repurposing Drugs to Inform Future Studies in the Era of COVID-19
September 24, 2021 Critical Path for Parkinson’s Consortium 3DT Initiative: Recommendations for involving people with Parkinson’s in clinical studies using digital health tools Recommendations for involving people with Parkinson’s in clinical studies using digital health tools
June 27, 2021-July 1, 2021 The Rare Disease Clinical Outcome Assessment Consortium: Collaboration Aimed at Accelerating Rare Disease Drug Development Presented at the DIA Virtual Global Annual Meeting, held June 27 – July 1, 2021.
May 7, 2021 COVID-19 Mitigation Strategies in Pediatric Rare Disease Clinical Trials Virtual Workshop The Patient-Reported Outcome Consortium’s Rare Disease Subcommittee is pleased to invite you to view the complimentary virtual w
