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November 9, 2022

Innovative Use of Healthcare Data, ERN Data Management Strategy Multistakeholder Workshop

The presentations of the workshop sessions are now available. In order to download the presentations...

October 12, 2022

August 16, 2022

April 12, 2022

This was presented as part of the RDCA-DAP monthly steering committee meeting, on April 12, 2022. It describes the 8 curation...

April 22, 2022

October 5, 2021

October 5, 2021

September 24, 2021

Recommendations for involving people with Parkinson’s in clinical studies using digital health tools

June 27, 2021-July 1, 2021

Presented at the DIA Virtual Global Annual Meeting, held June 27 – July 1, 2021.

May 7, 2021

The Patient-Reported Outcome Consortium’s Rare Disease Subcommittee is pleased to invite you to view the complimentary virtual w