March 13, 2025 Principles of good practice for translation of electronic clinical outcome assessments While many publications have outlined good practice recommendations for translation and electronic implementation of clinical...
January 14, 2025 Addressing the need for Standardization of Symptomatic Medication Documentation in Parkinson’s Disease Clinical Research: A Call to Action People with Parkinson's disease (PD) are prescribed a variety of medications to mitigate symptoms and improve their quality...
February 25, 2025 A Framework to Standardize Gait Study Protocols in Parkinson’s Disease Research over the past twenty years has shown that gait outcomes have a high sensitivity for diagnosing Parkinson's disease (PD)..
February 1, 2025 Understanding what aspects of Parkinson’s disease matter most to patients and families Understanding what matters to people with Parkinson’s and their family is essential to derive relevant clinical outcome measures
February 1, 2025 Accelerating Parkinson’s Disease Drug Development with Federated Learning Approaches Parkinson’s Disease is a progressive neurodegenerative disorder afflicting almost 12 million people...
February 13, 2025 Breaking the silence: challenges and opportunities in pediatric drug development Pediatric drug development faces significant challenges, including underfunding, ethical concerns, and complex regulatory...
February 1, 2025 Increased discoverability of rare disease datasets through knowledge graph integration Healthcare datasets can be used for many different purposes in the pursuit of...
January 7, 2025 Inclusion in neurological research: empowering people living with neurological diseases The value of involving people living with diseases in the research process is increasingly recognized...
December 13, 2024 Real-world evidence in the cloud: Tutorial on developing an end-to-end data and analytics pipeline using Amazon Web Services resources In the rapidly evolving landscape of healthcare and drug development, the ability to efficiently collect...
November 27, 2024 Voice of the Patient report Externally-Led Patient-Focused Drug Development (EL-PFDD) Meeting for ARPKD Patients and their Families Autosomal Recessive Polycystic Kidney Disease (ARPKD) is a rare genetic disease. It occurs in about one in 20,000 births...