News & Events
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September 11, 2023 - September 13, 2023
2023 Rare and Orphan Disease Conference presented by C-Path
Patients, providers, researchers, clinicians, biopharmaceutical companies, regulatory reviewers and scientists will leave this 2.5-day conference with an understanding of: C-Path’s Rare and Orphan Disease Program’s current and future impact on drug development in rare diseases The Critical Path for Rare Neurodegenerative Diseases (CP-RND) initiative’s first year impact and highlights How RDCA-DAP has been enhanced...... -
August 30, 2023
NIDDK Central Repository 20th Anniversary Workshop: Promoting Secondary Research to Accelerate Medical Breakthroughs and Innovation
The National Institute of Diabetes and Digestive Kidney Diseases (NIDDK) workshop highlights secondary use research that utilized resources generated from NIDDK-funded clinical research projects. The event also offers a review of NIDDK’s Data Ecosystem past, present, and future and launches a data challenge platform as part of the program’s vision for the future. C-Path’s T1D...... -
August 30, 2023
Fall 2023 HRA Members Meeting
This October 16-17, in Chicago, IL members of C-Path’s CDRC team will join the Health Research Alliance’s Members Meeting. The Health Research Alliance is a collaborative member organization of nonprofit research funders committed to maximizing the impact of biomedical research to improve human health. CDRC Senior Scientific Director Smith Heavner, will present on repurposing treatments...... -
August 29, 2023
Externally-Led Patient Focused Drug Development
C-Path’s Polycystic Kidney Disease Outcomes Consortium (PKDOC) and the PKD Foundation will be hosting an Externally-Led Patient Focused Drug Development (EL-PFDD) meeting for Autosomal Recessive Polycystic Kidney Disease (ARPKD) on Tuesday, August 29th. EL-PFDD meetings bring together patients and care partners, US Food and Drug Administration (FDA) representatives, pharmaceutical companies, physicians, and researchers who are...... -
August 10, 2023
Register Now: Teaching Patients and Caregivers: The Role of Education in Research and Data Sharing
Thursday, August 10, noon ET: This webinar will focus on the role of foundational education in research concepts, such as data literacy and the research process, in creating a culture of research participation and data sharing in the rare disease space. Intended for patient advocacy groups and researchers who work with rare disease patients, the......