News & Events
September 11, 2023 - September 13, 2023
2023 Rare and Orphan Disease Conference presented by C-PathPatients, providers, researchers, clinicians, biopharmaceutical companies, regulatory reviewers and scientists will leave this 2.5-day conference with an understanding of: C-Path’s Rare and Orphan Disease Program’s current and future impact on drug development in rare diseases The Critical Path for Rare Neurodegenerative Diseases (CP-RND) initiative’s first year impact and highlights How RDCA-DAP has been enhanced......
August 30, 2023
NIDDK Central Repository 20th Anniversary Workshop: Promoting Secondary Research to Accelerate Medical Breakthroughs and InnovationThe National Institute of Diabetes and Digestive Kidney Diseases (NIDDK) workshop highlights secondary use research that utilized resources generated from NIDDK-funded clinical research projects. The event also offers a review of NIDDK’s Data Ecosystem past, present, and future and launches a data challenge platform as part of the program’s vision for the future. C-Path’s T1D......
August 30, 2023
Fall 2023 HRA Members MeetingThis October 16-17, in Chicago, IL members of C-Path’s CDRC team will join the Health Research Alliance’s Members Meeting. The Health Research Alliance is a collaborative member organization of nonprofit research funders committed to maximizing the impact of biomedical research to improve human health. CDRC Senior Scientific Director Smith Heavner, will present on repurposing treatments......
August 29, 2023
Externally-Led Patient Focused Drug DevelopmentC-Path’s Polycystic Kidney Disease Outcomes Consortium (PKDOC) and the PKD Foundation will be hosting an Externally-Led Patient Focused Drug Development (EL-PFDD) meeting for Autosomal Recessive Polycystic Kidney Disease (ARPKD) on Tuesday, August 29th. EL-PFDD meetings bring together patients and care partners, US Food and Drug Administration (FDA) representatives, pharmaceutical companies, physicians, and researchers who are......
August 10, 2023
Register Now: Teaching Patients and Caregivers: The Role of Education in Research and Data SharingThursday, August 10, noon ET: This webinar will focus on the role of foundational education in research concepts, such as data literacy and the research process, in creating a culture of research participation and data sharing in the rare disease space. Intended for patient advocacy groups and researchers who work with rare disease patients, the......