December 14, 2022 View Now | Shared Stewardship in Collaborative Curation of Rare Disease Datasets Patient data is a key asset in understanding the progression of rare diseases and may it be provided in a variety of forms from a
December 11, 2022-December 14, 2022 15th Annual Conference on the Science of Dissemination and Implementation in Health Dec 11-14, Academy Health, Washington, DC Summary: Through a combination of plenaries, workshops, breakout, and poster sessions, t
December 8, 2022 ‘Rare Disease Moonshot’ – Scaling-up public-private partnerships to accelerate research into world’s rarest diseases AMSTERDAM, Netherlands, December 8, 2022 — A new initiative to boost research and development into rare and paediatric diseases
December 6, 2022-December 8, 2022 The Future of Health Summit Partnering for Patients, a Forum of the Future of Health Summit Washington, DC. December 6-8, 2022 “Creating New Markets for App
December 1, 2022 C-Path and Ultragenyx Announce Data Sharing Agreement to Support Rare Disease Treatment and Novel Therapies TUCSON, Ariz., Dec. 1, 2022 — Critical Path Institute (C-Path) and Ultragenyx Pharmaceutical, Inc., (NASDAQ: RARE), a biopharmac
November 30, 2022 eCOA Consortium Announces New Article for Applied Clinical Trials C-Path’s eCOA Consortium is pleased to announce that “Implementing Numeric Rating and Visual Analog Scales in an eCOA Soluti
November 16, 2022 The culture of research communication in neonatal intensive care units: key stakeholder perspectives
November 16, 2022 Empowering drug development: Leveraging insights from imaging technologies to enable the advancement of digital heath technologies
