News & Events

• June 7, 2023
  

  Newcastle University’s John Walton Muscular Dystrophy Research Centre Contributes Data to C-Path’s RDCA-DAP

  C-Path announced today that Newcastle University UK’s John Walton Muscular Dystrophy Research Centre will contribute data to the Rare Disease Cures Accelerator-Data and Analytics Platform (RDCA-DAP®) managed by C-Path. These data come from the Myotubular (MTM) and Centronuclear Myopathy (CNM) Patient Registry and the Global Registry for COL6-related dystrophies.

• May 31, 2023
  

  CACNA1A Foundation to Contribute Data to C-Path’s RDCA-DAP, Accelerating Neurological Disease Research and Therapeutic Development

  TUCSON, Ariz., May 31, 2023 — Critical Path Institute (C-Path) announced today that the CACNA1A Foundation, a parent-led nonprofit organization dedicated to creating awareness and finding a cure for CACNA1A-genetic related disorders, will be contributing data to the Rare Disease Cures Accelerator-Data and Analytics Platform (RDCA-DAP®) managed by C-Path. CACNA1A is a gene that is...
• March 29, 2023
  

  C-Path Appoints Key Scientific Leaders to Executive Roles

  TUCSON, Ariz., March 29, 2023 — Critical Path Institute (C-Path) announced today the appointment of three accomplished leaders to key executive roles within the organization. Cheryl D. Coon, Ph.D., joins C-Path as the Vice President for the Clinical Outcome Assessment (COA) Program. Shu Chin Ma, Ph.D., M.Sc., M.Phil., EMBA, has been named Vice President of...
• February 17, 2023
  

  C-Path Stands with Bruce Willis, Neurodegenerative Disease Community After FTD Diagnosis

  C-Path and its members stand with Bruce Willis and his family as they bravely revealed the difficult news of his Frontotemporal Degeneration (FTD) diagnosis yesterday. Also known as frontotemporal degeneration, the Association for Frontotemporal Degeneration (AFTD) defines FTD as a group of brain disorders caused by degeneration of the frontal and/or temporal lobes of the...
• October 27, 2022
  

  C-Path Appoints Neuropharmacology Expert as New Vice President – Rare and Orphan Disease Programs

  C-Path today announced the appointment of Collin Hovinga, Pharm.D., MS, FCCP as Vice President for its Rare and Orphan Disease Programs, and lead for both its Rare Disease Cures Accelerator-Data and Analytics Platform (RDCA-DAP) initiative and Critical Path for Rare Neurodegenerative Diseases (CP-RND) public-private partnership. RDCA-DAP focuses on rare disease data sharing and accelerating therapy development. CP-RND focuses on the accelerating the development of therapies for patients living with rare neurodegenerative diseases, including ALS.