Patient Reported Outcome Archives

November 27, 2024

Voice of the Patient report Externally-Led Patient-Focused Drug Development (EL-PFDD) Meeting for ARPKD Patients and their Families

Autosomal Recessive Polycystic Kidney Disease (ARPKD) is a rare genetic disease. It occurs in about one in 20,000 births...

November 27, 2024

Duchenne muscular dystrophy (DMD), a rare pediatric disease, presents numerous challenges when designing clinical trials...

October 8, 2024

Estelle Haenel, Celeste A. Elash, Katie Garner, Megan Turner, Scottie KernAbstract Electronic Clinical Outcome Assessment (eCOA) C

April 25, 2016-April 26, 2016

April 25 – 26, 2018 Sheraton Silver Spring Hotel 8777 Georgia Avenue Silver Spring, MD 20910 On April 25-26, 2018 the NINTH ANNU

TUCSON, Ariz. – May 7, 2018 — Critical Path Institute‘s (C-Path) Patient-Reported Outcome (PRO) Consortium annou

February 28, 2018

January 1, 2018

Tucson, AZ – December 18, 2017 Critical Path Institute‘s (C-Path) Patient-Reported Outcome (PRO) Consortium annou

January 12, 2017