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Rare Disease Cures Accelerator-Data and Analytics Platform

Platform Summary RDCA-DAP houses integrated patient-level data from diverse sources, including clinical trials, longitudinal obser

PRO measures assess one or more aspects of a patient’s health status based on information gathered directly from the patient, wi

Autosomal Dominant Polycystic Kidney Disease (ADPKD) is a debilitating genetic disease affecting more than 600,000 Americans and 1

Critical Path for Alpha-1 Antitrypsin Deficiency CPA-1 is a public-private partnership comprised of industry partners, academic re

The Electronic Clinical Outcome Assessment (eCOA) Consortium provides scientific leadership and best practice recommendations surr

Founded in 2015, D-RSC supports collaborative research through shared data access and advances development of drug development too

Founded in February 2021, CPTA is a public-private partnership that optimizes clinical trials, advances therapeutic developments a