Lysosomal Storage Disease Data Sharing Workshop, Webinar Series Session #2: Case Studies #1 – Proactive Data Sharing
March 24, 2025
This webinar from Critical Path Institute’s Critical Path to Lysosomal Diseases Consortium presents three case studies on prospective data sharing followed by an interactive panel discussion.
Thank you for helping us expand participation in this important work! We rely on people with lived experience of ALS to help ensure research reflects the needs and priorities of the community. Please use the form below to nominate someone whose experiences, perspectives, and interests may make them a strong contributor to an ALS Research Working Group. No scientific or medical background is required.