C-Path Supports Gleason, ALS Community at IgNight ALS

Members of the C-Path team with ALS Advocate Steve Gleason

The C-Path team was incredibly humbled to be a part of IgNight ALS recently in Washington, D.C., honoring Steve Gleason and celebrating the release of his new book, A Life Impossible: Living with ALS: Finding Peace and Wisdom Within a Fragile Existence

IgNight ALS brought together presenters to share their thoughts on the inflection point where disease discovery is being supported by emerging technologies. Attendees also heard from Steve through a reading from his new book, A Life Impossible. He spoke about making the seemingly impossible, possible, and how resilience creates the foundation. Guests left informed, inspired, and motivated.

Members of the C-Path at IgNight ALS Event

A heartfelt thank you to Answer ALS for including Critical Path Institute’s CEO Klaus Romero, Rare and Orphan Diseases program Associate Director Laura Hopkins, Portfolio Management Director Michael Minchik, and Rare and Orphan Diseases Director of Outreach Thomas Hart in this significant event. Romero had the honor of serving on an esteemed panel alongside political strategist James Carville, Microsoft’s Fred Humphries, Danielle Carnival, of the White House Office of Science and Technology Policy, Farhad Imam from Gates Ventures, Jeffrey Rothstein from Johns Hopkins Medicine and Emily Baxi from Public Health at the Milken Institute.  

This experience has only strengthened our commitment to end ALS. C-Path remains dedicated to leveraging our public-private partnership model to transform ALS data into actionable scientific solutions, accelerating drug development for the benefit of those living with ALS and their families.  

We must work TOGETHER and keep pushing forward for treatments and a cure.