ALS Working Group: Privacy Notice and Consent

By submitting this form, you consent to the collection and use of the information you provide by the Critical Path Institute (C-Path) and authorized personnel from partner organizations involved in the ALS Public-Private Partnership, including the Foundation for the National Institutes of Health (FNIH), the National Institutes of Health (NIH), and the U.S. Food and Drug Administration (FDA).

The information you provide will be used solely to evaluate your interest and eligibility for participation in ALS working groups, communicate with you regarding these opportunities, and administer related engagement activities. Access to your information will be limited to personnel who require it to perform these functions.

Your information will be stored on secure systems maintained by C-Path and protected through appropriate administrative, technical, and physical safeguards. Information will be retained for up to one year following submission unless a longer retention period is required by law or operational necessity.

Your information will not be sold and will not be used for marketing purposes. It will not be shared outside the organizations identified above except as required by law, to protect the security of the program, or with authorized service providers supporting program operations under appropriate confidentiality and data protection obligations.

By clicking “Submit,” you acknowledge that you have read and understood this notice and consent to the collection, storage, and use of your information as described above.