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Your Experience Can Make a Difference

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What interests you most about participating in a collaborative ALS Research Working Group?(Required)

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Biomarkers & Natural History: understanding disease progression and biological measures of ALS

Clinical Outcome Assessments (COA): Improving how ALS is measured in clinical trials and beyond

COA ALSFRS-R Statistical Analysis group : Standardizing analysis and interpretation of ALSFRS-R

COA Respiratory Function group : Standardizing measures of respiratory function

COA Digital Health Technologies group: Exploring digital tools for ALS research

Data Platform: data sharing, integration, and analysis

Communications: community outreach and dissemination: Lived Experience Working Group

Lived Experience Working Group: Providing ad hoc advisory support to research partners

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