Deb is the mom to Becky, a 30-week twice exceptional preemie now 17 years old.
Combining fields in technology and publishing, she has created PreemieWorld.com as the go-to space for education, support and resources for the preemie community including the acclaimed book, The Preemie Parent’s Survival Guide to the NICU. Along with this she is vested in premature infant outcomes with a global patient-reported data portal, Preemie Crystal Ball that is forthcoming. And in speaking about racial and healthy equity for years, the latest round of disparities and inequality led Deb to co-found the non-profit the Alliance for Black NICU Families.
She sits as a founding member and steering committee member of the National Premature Infant Health Coalition and a founding member and former Leadership team member of the NICU Parent Network, and was recently honored with a role on INC’s Leadership Team. Deb is also a columnist with Neonatal Network’s Neonatal Network Journal and for Neonatal Intensive Care magazine.
Most importantly she gives a heartfelt thank you to all who are attending today who have had a part in developing the care, the devices, the protocols and the pharmaceuticals that saved her daughter’s life.