News & Events
April 22, 2020 - April 23, 2020
11th Annual Patient-Reported Outcome Consortium Workshop
The Eleventh Annual Patient-Reported Outcome Consortium Workshop will be on Wednesday, April 22 and Thursday, April 23, 2020 at the Sheraton Silver Spring, in Silver Spring MD. A detailed agenda and logistics are currently being developed and will be shared when available.
This Workshop is open to the public and requires registration. For questions or registration information please contact Janelle Russell.
September 18, 2019
UPCOMING WEBINAR: Demystifying Submissions of eCOA Documentation for Ethics Review: Are We Making Submissions More Difficult than Necessary?All: We are pleased to invite you to attend an upcoming webinar hosted by the DIA Study Endpoints Community and presented by the ePRO Consortium. Demystifying Submissions of eCOA Documentation for Ethics Review: Are We Making Submissions More Difficult than Necessary? Date: Wednesday, September 18, 2019 Time: 11:00 am – 12:00 pm Eastern (US)......
- September 13, 2019
August 14, 2019
Conrado et al. 2019 Towards Regulatory EndorsementTowards regulatory endorsement of drug development tools to promote the application of model-informed drug development in Duchenne muscular dystrophy....
August 7, 2019
Funded by FDA, C-Path and NORD to Launch Rare Disease Data and Analytics Platform
C-Path and NORD Rare Disease Cures Accelerator Data Analytics Platform Launch, Tuesday, Sept. 17, Bethesda, MD
C-Path and the National Organization for Rare Disorders® will host a meeting to formally launch development of a new rare disease data and analytics platform. Funded by a cooperative agreement through the U.S. Food and Drug Administration, the goal of the platform is to accelerate the movement of therapies from bench to bedside for rare diseases. Register here.