News & Events

• November 9, 2021
  

  C-Path and Cure Mito Announce Data Sharing Agreement to Support Treatment Development For Leigh Syndrome and Mitochondrial Disease

  Critical Path Institute (C-Path) and Cure Mito Foundation (Cure Mito) today announced a joint collaboration to significantly promote data sharing and accelerate Leigh syndrome and other rare mitochondrial disease data incorporation into C-Path’s Rare Disease Cures Accelerator-Data and Analytics Platform (RDCA-DAP®).

• September 30, 2021
  

  C-Path and Pulse Infoframe Establish Patient-Centered Data Harmonization Partnership to Accelerate Collaborative Research in Rare Disease

  Critical Path Institute (C-Path) and Pulse Infoframe announced today their collaboration to advance technologies and tools to further rare disease research and drug development. In addition, both organizations will support the creation of more streamlined and transparent informed consent processes and best practices for the development of global unique identifiers, data standards and data dictionaries.

• September 15, 2021
  

  Rare Disease Innovation and Data Sharing Accelerated by New RDCA-DAP Program

  The Rare Disease Cures Accelerator-Data and Analytics Platform initiative (RDCA-DAP^®) officially launched its next phase on Tuesday establishing itself as the leading platform to accelerate rare disease treatment innovation. The launch was part of an all-day virtual workshop and annual meeting of rare disease stakeholders, featuring a platform demonstration, industry expert presentations and attendance by over 400 patients, providers, researchers, clinicians, biopharmaceutical companies, regulatory reviewers and scientists.

• September 13, 2021
  

  C-Path and RARE-X Establish New Collaboration for Rare Disease Data Sharing

  Critical Path Institute (C-Path), who’s aim is to catalyze the development of new approaches that advance medical innovation and regulatory science, today announced a collaboration with RARE-X to improve ways researchers can access and analyze patient data. RARE-X is a nonprofit organization dedicated to enabling patient communities to collect, manage and share their de-identified data to advance research.

• September 1, 2021
  

  Breaking Down Data Siloes: New Analytics Platform Sparks Opportunity for Rare Disease Field

  On Tuesday, September 14, 10 a.m. – 3:45 p.m. ET, the Rare Disease Cures Accelerator-Data and Analytics Platform (RDCA-DAP®), an FDA-funded initiative, will have its public premiere during the annual meeting for the project. The platform will host, standardize and share rare diseases data as part of its functionality.