News & Events

• May 19, 2021
  

  View Now | Interpretation of novel biomarkers in related diseases through data interoperability in a pan-rare disease database

  When: May 19, 2021, 12 p.m. ET

  Example Disease: Polycystic kidney disease and kidney transplant

  Presenters: Jagdeep Podichetty, PhD, Director, Predictive Analytics; Klaus Romero, MD, MS, FCP, Chief Science Officer and Executive Director of Clinical Pharmacology; Jackson Burton, PhD, Executive Director, Quantitative Medicine

  RDCA-DAP Team: Jeff Barrett, PhD, FCP., Senior Vice President, RDCA-DAP Lead; Alexandre Bétourné, PhD, PharmD, Scientific Director, RDCA-DAP

• April 21, 2021
  

  View Now | RDCA-DAP: Searching, visualizing and exploring data in the RDCA-DAP platform to identify data of interest for advanced analysis

  When: April 21, 2021, 12 p.m. ET
  Example Disease: Friedreich’s ataxia
  Presenters: Amanda Borens, MSc, Executive Director, Data Science, DCC; Vicki Theurer Crider, Sr. Project Manager, DCC; Kurt Michels, Data Analyst, Data Science

• January 21, 2021 - January 21, 2021
  

  Watch now: RDCA-DAP and EATRIS Present Rare Disease Drug Develoment Webinar

  January 21, 2021 | 5:00 p.m. – 6:30 p.m. CET
  Data Sharing and Analysis to Support Rare Disease Drug Development

  The European Infrastructure for Translational Medicine, EATRIS, has invited the Rare Disease Cures Accelerator-Data and Analytics Platform team to present as part of its webinar series, EATx, to introduce RDCA-DAP to the European academic and industry audience. The webinar will discuss how RDCA-DAP works with European entities and how data sharing within Europe, and between Europe and other countries, can be achieved with RDCA-DAP.

• October 19, 2020 - October 19, 2020
  

  Watch Now: RDCA-DAP 2020 Virtual Workshop

  Join us for the Rare Disease Cures Accelerator-Data and Analytics Platform (RDCA-DAP) annual workshop and learn more about:

  – RDCA-DAP’s first year progress and development
  – How RDCA-DAP will work to accelerate rare disease drug development
  – How the platform works: improved ability to search and sort data
  – Case studies on how sharing patient-level data accelerates understanding of rare diseases
  – Ways to get involved and the benefits of engaging with RDCA-DAP

  Monday, October 19, 11 a.m. – 3:30 p.m. ET. Watch now.

• September 18, 2020
  

  Watch Now: Accelerating Drug Development for Rare Diseases through Data Sharing and Analysis Webinar

  Despite increasing numbers of drug targets and technologies, rare disease drug development is frequently slowed by the low numbers of patients and the lack of comprehensive quantitative characterization of diseases. Tucson’s Critical Path Institute (C-Path), along with the National Organization of Rare Disorders and the FDA, have developed an integrated database and analytics hub called the Rare Disease Cures Accelerator-Data and Analytics Platform (RDCA-DAP) to help accelerate clinical development, make it less expensive, and encourage new companies to develop treatments for rare diseases.

  Presenters:

  Jane Larkindale, D.Phil. Critical Path Institute, Executive Director Rare Disease Cures Accelerator-Data and Analytics Platform; Duchenne Regulatory Science Consortium

  Vanessa Boulanger, MSc, National Organization for Rare Disorders, Director of Research Programs

  Michelle Campbell, PhD, U.S. Food and Drug Administration, Sr. Clinical Analyst for Stakeholder Engagement and Clinical Outcomes, Division of Neurology Products

  Part of Arizona Bioscience Week Educational Events | Watch AZBW2020